Additional Resources

Study Documents for Current Participants:

Information about CFRD:

For more information on Cystic fibrosis related diabetes, and other Cystic fibrosis related material, please visit the Cystic Fibrosis Foundation website at:

Other Studies:

Gateway to Weight Gain Study

The Nutrition and CF research teams need patients and families who will be starting Kalydeco ivacaftor) for a study looking at the causes of weight gain with Kalydeco treatment in people with Cysric Fibrosis and a gating mutation.

This study will assess change in energy balance, weight, muscle, fat, and lung function in subjects 6 and older with any of the gating mutations before Kayldeco treatment and after three months. All subjects will be seen at the Children’s Hospital of Philadelphia Clinical Translational Research Center.

You can download a PDF of it by clicking on the picture below:

Weight Gain Study flyer

For additional information, please see our study flyer, or contact:
Emily Karalunas
Phone: 267-426-9380